Pathfinder Partner Organizations
Pathfinder Partner Organizations (PPOs) are formal and informal networks serving a country, city, region, team, or hospital. PPOs are expected to coordinate outreach and referral efforts with the Pathfinder Outreach Network Program Director and the Executive Director of AmeriFace.
Criteria for Support Organizations:
- Membership is open to formal tax-exempt 501(c)(3) non-profit organizations, as well as informal local/regional organizations.
- Organization leadership representatives and condition-specific representative families must register as Pathfinders and agree to be listed in our national database, making themselves available to receive referrals for support and education purposes.
- Website visitors must be able to easily navigate to an AmeriFace-associated program website link on the organization’s website.
- Periodic reports of organization activities will be made at the Pathfinder program website (file your report here).
- All Pathfinder Partner Organizations will adhere to the AmeriFace Code of Ethics.
- All Pathfinder Partner Organizations will conduct their activities pursuant to all applicable federal, state and local laws.
- Formal tax-exempt 501(c)(3) non-profit organizations must remain in good standing with all local, state and federal agencies, including the Internal Revenue Service (IRS).
PPOs hold special status on the AmeriFace website and associated program websites. They are also awarded use of the PPO logo for their website(s), letterhead, business cards, etc. There is no PPO membership fee.
AmeriFace recognizes CarePages as a Pathfinder Partner Organization,
serving a variety of medical support communities, including our member families.
A variety of weekend and week-long camp experiences are available. Download 2014 Directory
Pathfinder Partner Organizations (PPOs) are listed alphabetically.
© ameriface, PO Box 751112, Las Vegas, NV 89136-1112
Toll-free: (888) 486-1209 Fax: (702) 341-5351 info@ameriface.org
SUPPORT ORGANIZATIONS
(UNDER CONSTRUCTION)
AmeriFace - You Are Here!
The Premier Cleft/Craniofacial Support Organization!
Debbie Oliver, Executive Director
PO Box 751112
Las Vegas, NV 89136-1112
Toll-free: (888) 486-1209
Phone: (702) 769-9264
Fax: (702) 341-5351
Programs of AmeriFace include:
Pathfinder Outreach Network (serving all PPO organizations)
The following organizations qualify as
Pathfinder Partner Organizations and serve as patient/family support organizations:
123 Edward St., Suite 1003
Toronto, ON, Canada M5G 1E2
Phone: (416) 597-2229 or 1-800-665-FACE
Fax: (416) 597-8494
Post Office Box 2571
Columbia, SC 29202
Phone: (803) 732-2372
The Squire Centre
33-37 University Street
London, WC1E 6JN
Phone: 0845-4500-275
Fax: 0845-4500-276
13140 Coit Road, Suite 517
Dallas, TX 75240
Phone: (800) 535-3643 or (214) 570-9099
1504 East Franklin St., Suite 102
Chapel Hill, NC 27514-2820
CLEFTLINE: 1-800-24-CLEFT (24 hours, toll free)
Parent/patient feedback on various teams/physicians
533 Turnberry Drive
Norwalk, IA 50211
Phone: (515) 306-2085
P. O. Box 11082
Chattanooga, TN 37401
Phone: (800) 332-2373
100 Southwood Avenue
Knaphill, Woking
Surrey GU21 2EY
Phone: 01483-837-523
258 Harvard St., # 367
Brookline, MA 02446
13210 SE 342nd Street
Auburn, WA 98092
Phone: 1-800-507-FNMS
DeDe Van Quill, Director
509 Northmont Way
Salt Lake City, UT 84103-3324
Phone: (801) 364-7060
2011 Palomar Airport Rd, Suite 206
Carlsbad, CA 92011
Phone: (760) 944-7774
Toll-Free: (888) 551-1003
Fax: (760) 944-1729
2023 N. Atlantic Ave. #236
Cocoa Beach, FL 32931
Phone: (561) 252-3839
22 Manhasset Avenue
Port Washington, NY 11050
Phone: (800) 8-MARFAN
Phone: (516) 883-8712
Fax: (516) 883-8040
Phone: 1-888-MICLEFT
Formerly known as the
National Foundation for Facial Reconstruction (NFFR)
333 East 30th Street, Lobby Unit
New York, NY 10016
Phone: (212) 263-6656
Fax: (212) 263-7534
PO Box 147
Pilot Grove, MO 65276
Phone: (660) 834-3406
410 E. Main Street, P.O. Box 114
Mascoutah, IL 62258-0114
Phone: (618) 566-2020
Fax: (618) 566-4718
2 Penn Plaza, 23rd Floor
New York, New York 10121
212-904-5243
6435 Tidewater Drive
Norfolk, VA 23509
Phone: (888) 677-6453)
Phone: (757) 321-7645
Fax: (757) 321-7660
Parry Romberg Syndrome
3604 Biscayne
Quincy, IL 62305
41 Madison Ave., 28th floor
New York, NY 10010
Phone: (800) 932-9541
or (212) 689-9199
Fax: (212) 689-9299
Kari Almeida - (509) 251-8387
Lori Ullman - (509) 999-2195
15 Angelina Drive
Augusta, KS 67010
Phone: (316) 775-2993
PO Box 418
Mt. Freedom, NJ 07970-0418
Phone: (800) 627-5482 or (973) 895-4445
Fax: (973) 895-4846
P.O. Box 2891
Fairfax, VA 22031-2891
7777 Forest Lane, Suite C-621
P.O. Box 515838
Dallas, TX 75251-5838
Phone: (972) 566-6669, (800) 533-3315
Fax: (972) 566-3850
(UNDER CONSTRUCTION)
PROFESSIONAL ORGANIZATIONS & ASSOCIATIONS(UNDER CONSTRUCTION)
930 E. Woodfield Road
Schaumburg, IL 60173
Phone: (866) 503-SKIN (7546)
1121 West Michigan Street
Indianapolis, IN 46202
Phone: (317) 274-5571
Fax: (317) 278-2818
1504 East Franklin St., Suite 102
Chapel Hill, NC 27514-2820
Phone: (919) 933-9044
Fax: (919) 933-9604
211 East Chicago Ave.
Chicago, IL 60611-2678
Phone: (312) 440-2500
1400 K Street, NW, Suite 1100
Washington, DC 20005
Phone: (202) 289-7201
Fax: (202)289-7204
444 E. Algonquin Rd.
Arlington Heights, IL 60005
2200 Research Boulevard
Rockville, MD 20850-3289
Phone: (301) 296-5700
Fax: (301) 296-8580
1901 Pennsylvania Avenue NW, Suite 607
Washington DC 20006
Phone: (202) 223-0667
Fax: (202) 463-1257
17w220 22nd Street, Suite 420
Oakbrook Terrace, Illinois 60181-4480
Phone: (630) 833-0945
Fax: ( 630) 833-1382
(UNDER CONSTRUCTION)
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